Hello everyone! This is just a blog made to complain about my health and healthcare system. I need to vent about this stuff because it’s something I need to live with. To those who might not know, I am dealing with a currently unknown immune disorder. We’ve been running tests for over 2 years now and only have a few ideas. What we do know about my health is that my immune system is rather bad and I am constantly getting sick and infections. What else is known is that my body isn’t absorbing nutrients the way it’s supposed to. There are currently known issues that are most likely related to my bone marrow, as my red blood cells are chronically low and my white blood cells are relatively high. I also have photosensitivity and heat intolerance, so my ability to enjoy the outdoors is rather limited. There are other details but I don’t feel the need to disclose them since I am not looking for medical advice, just venting. As a result of my condition, I struggle to find and retain employment that directly works with people or money. I always end up working a few weeks, then getting an infection, and eventually losing my job. It’s been difficult to work around all of this due to my lack of a diagnosis, as that’s been the biggest hurdle, we don’t know what’s causing my health issues and thus don’t know how to deal with it. This has resulted in me being constantly stressed over my struggles with employment and struggles to make any decent wages. Which only makes matters worse as the stress causes me to get sick. It’s a constant cycle of getting a job, getting sick, getting stressed, losing the job, getting stressed, and struggling to cope with this reality. I’ve been trying to retain a positive outlook on life and even actively sought out medical care to help with some of the issues that have contributed to my poor health. The good news is the month I spent getting surgeries and recovering has shown noticeable improvements in my overall well-being. I am not dealing with several of the stressors and pain that I was dealing with before. The less-than-good news is that I am still not out of the woods. I am still going to need more testing, more doctors looking me over, and more stress to figure this shit out. It fucking sucks and I hate how this has affected my entire life. This has made employment a struggle, it’s affected my ability to stream, and it’s affected my mental health. I try not to dwell too much on this due to the reality that dwelling only causes more problems. I try to keep a positive outlook on life because we are further along in understanding this issue than when we started. At the same time, it doesn’t stop the stress of having dealt with this for years and still not knowing what’s going on. I honestly just wish I had a diagnosis. It doesn’t matter what the outcome is, I am tired of the stress of not knowing what’s going on with my own body. I do have some appointments lined up and I am hoping that I can keep applying pressure to the doctors to figure this out.
I'm glad I got that out there, it’s been stressing me out for a very long time. I am currently fighting yet another infection and it’s not fun. It’s not serious, it’s just a mild infection but it’s still taking its toll and is still stressful nonetheless. So I wanted to vent a little instead of sitting on these thoughts for too long.
Please enjoy this Miko/The Catboy pic by @x65943
I'm glad I got that out there, it’s been stressing me out for a very long time. I am currently fighting yet another infection and it’s not fun. It’s not serious, it’s just a mild infection but it’s still taking its toll and is still stressful nonetheless. So I wanted to vent a little instead of sitting on these thoughts for too long.
Please enjoy this Miko/The Catboy pic by @x65943
